It is with great sadness and heavy heart that I report the death of Krystie, a very courageous and inspirational young lady. I worked with her mother, Molvia, at the time that she published this book, which you must read. I was one of the first to review the book on Goodreads and Amazon and on BBC Radio Oxford.
Molvia and Krystie have continued to inspire me over the years.
My heart goes out to her family today as I re-post my original review in memory of Krystie. The bright flame of her spirit will burn forever in Molvia’s heart and in the hearts of many of her friends and family.
She may even be remembered by members of the musical group McFly. You can find out why by reading the book. I commend it to you.
My rating: 4 of 5 stars
This is the astonishing personal account of the courage, determination and perseverance of the author as she battles her way through a life that has more than its fair share of obstacles. The main subject of the book is the plight of her daughter, Krystie, who has been diagnosed with Friedrich’s Ataxia, a crippling and life-shortening genetic illness. However, from childhood, Molvia has suffered occasional family tragedy and near-tragedy.
When Krystie is born, Molvia’s instinct and previous experience tell her that there is something amiss. The medical experts think that they know better, but they are proved to be wrong. As Krystie grows up, this is a pattern which is often repeated. Molvia researches all the possibilities and analyses the best path for her daughter.
Krystie becomes as determined as her mother. She insists on as much independence as possible and succeeds at home, socially and at school in the face of adversity. Her awareness of her condition strengthens her resolve to milk every drop of positive experience out of her life. She has probably already achieved more in her life than people who are three or four times her age.
Whilst reading this book, I was reduced to tears on more than one occasion. These were not tears of sadness but of joy as I shared Molvia’s pride in Krystie’s achievements.
Molvia’s account is interspersed with Krystie’s own versions of events and is nicely rounded off with the recollections of one of Krystie’s elder brothers.
There are some tiny discrepancies in the chronology of the account, but this just proves what the reader already knows; that Molvia is human.
You must read this book. Whether you are living with genetic illness in your family or not, you will be inspired and filled with great hope.